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Friedreich’s Ataxia

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

Cork boy will return to school 'with a smile on his face' after Friedreich's ataxia drug approved

Cork boy will return to school 'with a smile on his face' after Friedreich's ataxia drug approved

Coady’s son Rory died from Friedreich’s Ataxia last year, and his son Paudie, also has the condition.

HSE agrees to fund Skyclarys for patients with Friedreich’s Ataxia

HSE agrees to fund Skyclarys for patients with Friedreich’s Ataxia

The SMT took account of a substantially improved financial offer made in recent days by the company Biogen to the HSE arising from intensive discussions.

Protest in Dublin over Skyclarys reimbursement

Protest in Dublin over Skyclarys reimbursement

It is a rare, inherited neurodegenerative disorder that affects the nervous system and can lead to severe movement and coordination issues, often beginning in childhood.

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Oisin ‘thrown to the wolves’ by the HSE, says his mum

Oisin ‘thrown to the wolves’ by the HSE, says his mum

Pressure mounts on HSE funding decision for Friedreich’s Ataxia drug

Pressure mounts on HSE funding decision for Friedreich’s Ataxia drug

Senior Fianna Fáil members push Government to overrule HSE on drug funding

Senior Fianna Fáil members push Government to overrule HSE on drug funding

'I feel I’ve let him down': Father devastated after HSE group rejects funding for son's drug

'I feel I’ve let him down': Father devastated after HSE group rejects funding for son's drug

Co Kilkenny woman diagnosed with rare disease sues HSE over access to drug

Co Kilkenny woman diagnosed with rare disease sues HSE over access to drug

Tue, 28 Jul, 2026

She is fully reliant on a wheelchair for mobility and requires assistance with “virtually all aspects of daily living” on account of her condition.

Taoiseach accepts communication ‘issues’ with rare drugs reimbursement process

Taoiseach accepts communication ‘issues’ with rare drugs reimbursement process

Wed, 15 Jul, 2026

Seventy rare disease drugs have been approved for reimbursement in the four years since 2021.

HSE urged to ‘think past price’ in protest over drug for Friedreich’s Ataxia

HSE urged to ‘think past price’ in protest over drug for Friedreich’s Ataxia

Tue, 14 Jul, 2026

Emily Felix has led calls for the Skyclarys to be made available for reimbursement to patients in Ireland.